skip to main content

Path Analysis of Family Communication, Decision-Making, and Caregiver Burden on Family Caregivers’ Quality of Life: The Mediating Role of Self-Efficacy

*Setyoadi Setyoadi orcid scopus publons  -  Department of Nursing, Faculty of Health Sciences, Universitas Brawijaya, Indonesia
Dina Dewi Sartika Lestari Ismail orcid  -  Department of Nursing, Faculty of Health Sciences, Universitas Brawijaya, Indonesia
Yati Sri Hayati orcid  -  Department of Nursing, Faculty of Health Sciences, Universitas Brawijaya, Indonesia
Ferry Efendi orcid  -  Faculty of Nursing, Universitas Airlangga, Indonesia
Joni Haryanto orcid  -  Faculty of Nursing, Universitas Airlangga, Indonesia
Open Access Copyright (c) 2026 by the Authors, Published by Department of Nursing, Faculty of Medicine, Universitas Diponegoro
Creative Commons License This work is licensed under a Creative Commons Attribution-ShareAlike 4.0 International License.

Citation Format:
Abstract

Background: Type 2 Diabetes Mellitus (T2DM) presents a chronic health challenge that extends beyond the patients, significantly affecting family members who assume caregiving responsibilities. Family caregivers often experience emotional, physical, and psychological burdens, particularly in low-resource settings. However, the interplay between family communication, decision-making, caregiver burden, and self-efficacy, and how these factors jointly influence caregiver quality of life, remains insufficiently explored, particularly in culturally specific and resource-limited settings.

Purpose: This study aimed to examine the structural relationships among family communication, shared decision-making, caregiver burden, self-efficacy, and their influence on the quality of life of family caregivers of individuals with T2DM.

Methods: A cross-sectional study was conducted involving 327 family caregivers recruited from 16 primary health centers using cluster random sampling. Data were collected using validated instruments to measure family communication, decision-making, caregiver burden, self-efficacy, and quality of life. Structural Equation Modeling (SEM) was used to analyze both direct and indirect relationships among the variables.

Results: The findings revealed that family communication (β = 0.35) and decision-making (β = 0.42) had significant positive effects on self-efficacy, whereas caregiver burden (β = -0.33) had a significant negative effect. Self-efficacy, in turn, significantly improved caregivers’ quality of life (β = 0.51). Furthermore, self-efficacy mediated the indirect effects of family communication, decision-making, and caregiver burden on quality of life. The model explained 49% of the variance in self-efficacy and 64% of the variance in caregiver quality of life.

Conclusion: Self-efficacy plays a central role in enhancing caregiver well-being and quality of life. Interventions that promote open family communication, shared decision-making, and burden reduction are essential. Nursing implications include the need for culturally sensitive, family-centered nursing interventions to enhance caregiver self-efficacy through communication training, psychosocial support, and empowerment in decision-making. Nurses should be equipped to assess caregiver burden and facilitate supportive family dynamics to promote sustainable diabetes care.

Fulltext Email colleagues
Keywords: Caregiver burden; decision-making; family communication; quality of life; self-efficacy
Funding: Faculty of Health Sciences, Universitas Brawijaya, Malang, Indonesia

Article Metrics:

  1. Al-Salmi, N., Cook, P., & D’souza, M. S. (2022). Diet Adherence among Adults with Type 2 Diabetes Mellitus: A Concept Analysis. Oman Medical Journal, 37(2). https://doi.org/https://doi.org/10.5001/omj.2021.69
  2. Albani, E. N., Toska, A., Togas, C., Rigatos, S., Vus, V., Fradelos, E. C., Tzenalis, A., & Saridi, M. (2024). Burden of Caregivers of Patients with Chronic Diseases in Primary Health Care: A Cross-Sectional Study in Greece. Nursing Reports, 14(3), 1633–1646. https://doi.org/10.3390/nursrep14030122
  3. AlSaleh, A., Ahmed, J., Alsenani, I., Alhousni, W., & AalAbdulsalam, R. (2025). Caregiver Burden in Parents of Children With Type 1 Diabetes in Bahrain: A Qualitative Study. Science of Diabetes Self-Management and Care. https://doi.org/10.1177/26350106251326519
  4. Althubaiti, A. (2023). Sample size determination: A practical guide for health researchers. Journal of General and Family Medicine, 24(2), 72–78. https://doi.org/10.1002/jgf2.600
  5. Ataya, J., Soqia, J., Albani, N., Tahhan, N. K., Alfawal, M., Elmolla, O., Albaldi, A., Alsheikh, R. A., & Kabalan, Y. (2024). The role of self-efficacy in managing type 2 diabetes and emotional well-being: a cross sectional study. BMC Public Health, 24(1). https://doi.org/10.1186/s12889-024-21050-2
  6. Babaii, A., Mohammadi, E., & Sadooghiasl, A. (2021). The Meaning of the Empathetic Nurse–Patient Communication: A Qualitative Study. Journal of Patient Experience, 8, 1–9. https://doi.org/10.1177/23743735211056432
  7. Babo, F., Carvalho, H., Santos, B., Matos, P. M., & Mota, C. P. (2024). Affective relationships with caregivers, self-efficacy, and hope of adolescents in residential care. Children and Youth Services Review, 157(June 2023), 107438. https://doi.org/10.1016/j.childyouth.2024.107438
  8. Bandura A. (1993). Percieved Self-Efficacy in Cognitive Development and Functioning. Educational Psychologist, 28(2), 117–148. https://www.itma.vt.edu/courses/tel/resources/bandura(1993)_self-efficacy.pdf
  9. Bongelli, R., Busilacchi, G., Pacifico, A., Fabiani, M., Guarascio, C., Sofritti, F., Lamura, G., & Santini, S. (2024). Caregiving burden, social support, and psychological well-being among family caregivers of older Italians: a cross-sectional study. Frontiers in Public Health, 12(October), 1–20. https://doi.org/10.3389/fpubh.2024.1474967
  10. Busebaia, T. J. A., Thompson, J., Fairbrother, H., & Ali, P. (2023). The role of family in supporting adherence to diabetes self-care management practices: An umbrella review. Journal of Advanced Nursing, 79(10), 3652–3677. https://doi.org/10.1111/jan.15689
  11. Choi, J. Y., Lee, S. H., & Yu, S. (2024). Exploring Factors Influencing Caregiver Burden: A Systematic Review of Family Caregivers of Older Adults with Chronic Illness in Local Communities. Healthcare (Switzerland), 12(10). https://doi.org/10.3390/healthcare12101002
  12. Culberson, J. W., Kopel, J., Sehar, U., & Reddy, P. H. (2023). Urgent needs of caregiving in ageing populations with Alzheimer’s disease and other chronic conditions: Support our loved ones. Ageing Research Reviews, 90(June), 102001. https://doi.org/10.1016/j.arr.2023.102001
  13. Determeijer, J. J., Van Waard, J. D., Leopold, S. J., Spijker, R., Agyemang, C., & van Vugt, M. (2024). The barriers and facilitators family caregivers experience when participating in resource-limited hospital care: a qualitative systematic review. BMJ Global Health, 9(11), 1–15. https://doi.org/10.1136/bmjgh-2024-015956
  14. Dinkes. (2023). Profil Kesehatan Kota Malang 2023
  15. Gregg, E. W., Pratt, A., Owens, A., Barron, E., Dunbar-Rees, R., Slade, E. T., Hafezparast, N., Bakhai, C., Chappell, P., Cornelius, V., Johnston, D. G., Mathews, J., Pickles, J., Bragan Turner, E., Wainman, G., Roberts, K., Khunti, K., & Valabhji, J. (2024). The burden of diabetes-associated multiple long-term conditions on years of life spent and lost. Nature Medicine, 30(October). https://doi.org/10.1038/s41591-024-03123-2
  16. Guo, N., Ho, H. C. Y., Wang, M. P., Lai, A. Y., Luk, T. T., Viswanath, K., Chan, S. S., & Lam, T. H. (2021). Factor Structure and Psychometric Properties of the Family Communication Scale in the Chinese Population. Frontiers in Psychology, 12(November), 1–11. https://doi.org/10.3389/fpsyg.2021.736514
  17. Hou, C.-H., & Chen, P.-L. (2024). Optimism, Social Support, and Caregiving Burden among the Long-Term Caregivers: The Mediating Effect of Psychological Resilience. International Journal of Mental Health Promotion, 0(0), 1–10. https://doi.org/10.32604/ijmhp.2024.051751
  18. IDF. (2025). IDF Diabetes Atlas
  19. Kartika, A., Nurani, N., Srihayati, Y., & Kristianingrum, N. D. (2024). The Relationship Between Health Service Support at Community Health Centers and Family Caregiver Coping for Patients with Type 2 Diabetes Mellitus. Window of Health : Jurnal Kesehatan, 7(4), 439–450
  20. Kolb, L. (2021). An Effective Model of Diabetes Care and Education: The ADCES7 Self-Care BehaviorsTM. Science of Diabetes Self-Management and Care, 47(1), 30–53. https://doi.org/10.1177/0145721720978154
  21. Légaré, F., Adekpedjou, R., Stacey, D., Turcotte, S., Kryworuchko, J., Graham, I. D., Lyddiatt, A., Politi, M. C., Thomson, R., Elwyn, G., & Donner-Banzhoff, N. (2018). Interventions for increasing the use of shared decision making by healthcare professionals. The Cochrane Database of Systematic Reviews, 7, CD006732. https://doi.org/10.1002/14651858.CD006732.pub4
  22. Leukel, P. J., Kollin, S. R., Lewis, B. R., & Lee, A. A. (2022). The influence of emotion regulation and family involvement on diabetes distress among adults with type 2 diabetes. Journal of Behavioral Medicine, 45(6), 904–913. https://doi.org/10.1007/s10865-022-00351-0
  23. Lin, K., Yao, M., Andrew, L., Li, R., Chen, Y., Oosthuizen, J., Sim, M., & Chen, Y. (2024). Exploring treatment burden in people with type 2 diabetes mellitus: a thematic analysis in china’s primary care settings. BMC Primary Care, 25(1), 1–16. https://doi.org/10.1186/s12875-024-02301-y
  24. Lindt, N., Van Berkel, J., & Mulder, B. C. (2020). Determinants of overburdening among informal carers: A systematic review. BMC Geriatrics, 20(1), 1–12. https://doi.org/10.1186/s12877-020-01708-3
  25. Liu, H. Y., & Huang, L. H. (2018). The relationship between family functioning and caregiving appraisal of dementia family caregivers: caregiving self-efficacy as a mediator. Aging and Mental Health, 22(4), 558–567. https://doi.org/10.1080/13607863.2016.1269148
  26. Liu, X. (2023). Advances in Psychological and Social Aetiology of Patients with Diabetes. Diabetes, Metabolic Syndrome and Obesity, 16(December), 4187–4194. https://doi.org/10.2147/DMSO.S439767
  27. Lu, X., Xie, Q., Pan, X., Zhang, R., Zhang, X., Peng, G., Zhang, Y., Shen, S., & Tong, N. (2024). Type 2 diabetes mellitus in adults: pathogenesis, prevention and therapy. Signal Transduction and Targeted Therapy, 9(1), 262. https://doi.org/10.1038/s41392-024-01951-9
  28. Madit, W., Harnirattisai, T., Hain, D., & Gaudio, P. A. (2024). Effect of a self-care promoting program on engagement in self-care behaviors and health-related outcomes among persons with type 2 diabetes and diabetic retinopathy: A single-blind randomized controlled trial. Belitung Nursing Journal, 10(3), 272–284. https://doi.org/10.33546/bnj.3360
  29. Montori, V. M., Ruissen, M. M., Hargraves, I. G., Brito, J. P., & Kunneman, M. (2023). Shared decision-making as a method of care. BMJ Evidence-Based Medicine, 28(4), 213–217. https://doi.org/10.1136/bmjebm-2022-112068
  30. Naik, B., Krishnamoorthy, Y., Kanungo, S., T, M., & Kar, S. (2018). Primary caregiver involvement in management of type 2 diabetes mellitus: A community-based observational study from urban Puducherry. International Journal of Noncommunicable Diseases, 3(1), 36. https://doi.org/10.4103/jncd.jncd_11_18
  31. Neller, S. A., Hebdon, M. T., Wickens, E., Scammon, D. L., Utz, R. L., Dassel, K. B., Terrill, A. L., Ellington, L., & Kirby, A. V. (2024). Family caregiver experiences and needs across health conditions, relationships, and the lifespan: a Qualitative analysis. International Journal of Qualitative Studies on Health and Well-Being, 19(1). https://doi.org/10.1080/17482631.2023.2296694
  32. Niño-de-Guzman Quispe, E., Bracchiglione, J., Ballester, M., Groene, O., Heijmans, M., Martínez García, L., Noordman, J., Orrego, C., Rocha, C., Suñol, R., & Alonso-Coello, P. (2023). Patients’ and informal caregivers’ perspectives on self-management interventions for type 2 diabetes mellitus outcomes: a mixed-methods overview of 14 years of reviews. Archives of Public Health, 81(1), 1–21. https://doi.org/10.1186/s13690-023-01153-9
  33. Northwood, M., Shah, A. Q., Abeygunawardena, C., Garnett, A., & Schumacher, C. (2023). Care Coordination of Older Adults With Diabetes: A Scoping Review. Canadian Journal of Diabetes, 47(3), 272–286. https://doi.org/10.1016/j.jcjd.2022.11.004
  34. Peimani, M., Stewart, A. L., Garmaroudi, G., & Nasli-Esfahani, E. (2025). Shared decision-making in type 2 diabetes: a systematic review of patients’ preferences and healthcare providers’ perspectives. BMC Health Services Research, 25(1). https://doi.org/10.1186/s12913-024-12160-z
  35. Pignatiello, G. A., Irani, E., Tahir, S., Tsivitse, E., & Hickman, R. L. (2020). A psychometric evaluation of the Family Decision-Making Self-Efficacy Scale among surrogate decision-makers of the critically ill. Palliative and Supportive Care, 18(5), 537–543. https://doi.org/10.1017/S1478951519000907
  36. Ritter, P. L., Sheth, K., Stewart, A. L., Gallagher-Thompson, D., & Lorig, K. (2022). Development and Evaluation of the Eight-Item Caregiver Self-Efficacy Scale (CSES-8). Gerontologist, 62(3), E140–E149. https://doi.org/10.1093/geront/gnaa174
  37. Semere, W., Althouse, A. D., Rosland, A. M., White, D., Arnold, R., Chu, E., Smith, T. J., & Schenker, Y. (2021). Poor patient health is associated with higher caregiver burden for older adults with advanced cancer. Journal of Geriatric Oncology, 12(5), 771–778. https://doi.org/10.1016/j.jgo.2021.01.002
  38. Seng, J. J. B., Gwee, M. F. R., Yong, M. H. A., Kwan, Y. H., Thumboo, J., & Low, L. L. (2023). Role of Caregivers in Remote Management of Patients With Type 2 Diabetes Mellitus: Systematic Review of Literature. Journal of Medical Internet Research, 25(1), 1–11. https://doi.org/10.2196/46988
  39. Setiyani, R., Windsor, C., & Douglas, C. (2019). Filial Piety: From the Perspective of Indonesian Young Adults. Nurse Media Journal of Nursing, 9(1), 46. https://doi.org/10.14710/nmjn.v9i1.21170
  40. Setyoadi, Meiliana, S. W., Hakim, F. O., Hayati, Y. S., Kristianingrum, N. D., Kartika, A. W., & Sandi, P. S. (2024). The Burden of Family Caregivers in the Care of Type 2 Diabetes Mellitus Patients: A Literature Review. Journal of Rural Community Nursing Practice, 2(1), 40–47. https://doi.org/10.58545/jrcnp.v2i1.207
  41. Setyoadi, S., Efendi, F., Haryanto, J., Rosyidawati, F., & Kristianingrum, N. D. (2023). Family Coping Strategies and Quality of Life of Patients with Type-2 Diabetes Mellitus in Primary Health Care in Indonesia. Nurse Media Journal of Nursing, 13(December), 274–285. https://doi.org/https://doi.org/10.14710/nmjn.v13i3.56700
  42. Sharkiya, S. H. (2023). Quality communication can improve patient-centred health outcomes among older patients: a rapid review. BMC Health Services Research, 23(1), 1–14. https://doi.org/10.1186/s12913-023-09869-8
  43. Shengyao, Y., Salarzadeh Jenatabadi, H., Mengshi, Y., Minqin, C., Xuefen, L., & Mustafa, Z. (2024). Academic resilience, self-efficacy, and motivation: the role of parenting style. Scientific Reports, 14(1), 1–14. https://doi.org/10.1038/s41598-024-55530-7
  44. Soares, V. L., Lemos, S., Sequeira, C., Morais, C. S., & Barbieri-Figueiredo, M. do C. (2024). Integrating literature and family insights: exploring the needs of families supporting adults with diabetes. Frontiers in Public Health, 12(January), 1–13. https://doi.org/10.3389/fpubh.2024.1473723
  45. Sugandh, F., Chandio, M., Raveena, F., Kumar, L., Karishma, F., Khuwaja, S., Memon, U. A., Bai, K., Kashif, M., Varrassi, G., Khatri, M., & Kumar, S. (2023). Advances in the Management of Diabetes Mellitus: A Focus on Personalized Medicine. Cureus, 15(8). https://doi.org/10.7759/cureus.43697
  46. Teli, M., Thato, R., Hasan, F., & Rias, Y. A. (2024). Effectiveness of Family-Based Diabetes Management Intervention on Glycated Haemoglobin Among Adults With Type 2 Diabetes: A Systematic Review and Meta-Analysis of Randomized Controlled Trials. Biological Research for Nursing, 26(2), 315–333. https://doi.org/10.1177/10998004231218887
  47. Ting, Z., Huicai, W., Kudelati, Z., Yongkang, G., Alimu, A., Xiaotian, Z., Xingge, Q., & Tong, L. (2025). Exploring the dynamics of self-efficacy, resilience, and self-management on quality of life in type 2 diabetes patients: A moderated mediation approach from a positive psychology perspective. PLoS ONE, 20(1 January), 1–18. https://doi.org/10.1371/journal.pone.0317753
  48. Unsar, S., Erol, O., & Ozdemir, O. (2021). Caregiving burden, depression, and anxiety in family caregivers of patients with cancer. European Journal of Oncology Nursing, 50(April 2020), 101882. https://doi.org/10.1016/j.ejon.2020.101882
  49. Warapornmongkholkul, A., Howteerakul, N., Suwannapong, N., & Soparattanapaisarn, N. (2018). Self-efficacy, social support, and quality of life among primary family-member caregivers of patients with cancer in Thailand. Journal of Health Research, 32(2), 111–122. https://doi.org/10.1108/JHR-01-2018-012
  50. White, C. L., Barrera, A., Turner, S., Glassner, A., Brackett, J., Rivette, S., & Meyer, K. (2022). Family caregivers’ perceptions and experiences of participating in the learning skills together intervention to build self-efficacy for providing complex care. Geriatric Nursing, 45, 198–204. https://doi.org/10.1016/j.gerinurse.2022.04.012
  51. Wittenberg, E., Buller, H., Ferrell, B., Koczywas, M., & Borneman, T. (2017). Understanding Family Caregiver Communication to Provide Family-Centered Cancer Care. Seminars in Oncology Nursing, 33(5), 507–516. https://doi.org/10.1016/j.soncn.2017.09.001
  52. Wittenberg, E., Kerr, A. M., & Goldsmith, J. V. (2021). Family caregivers’ perceived communication self-efficacy with physicians. Palliative and Supportive Care, 19(5), 540–546. https://doi.org/10.1017/S1478951520001236
  53. Woodward, A., Walters, K., Davies, N., Nimmons, D., Protheroe, J., Chew-Graham, C. A., Stevenson, F., & Armstrong, M. (2024). Barriers and facilitators of self-management of diabetes amongst people experiencing socioeconomic deprivation: A systematic review and qualitative synthesis. Health Expectations, 27(3). https://doi.org/10.1111/hex.14070
  54. World Health Organization. (1997). WHOQOL-BREF US Version. University of Washington Seattle,United States of America, June, 1–12
  55. Zajdel, M., Keller, K. R., Mountcastle, L., & Koehly, L. M. (2023). Shared responsibility and network collaboration in caregiving. Social Networks, 74, 236–244. https://doi.org/10.1016/j.socnet.2023.05.002
  56. Zarit, S. H., Reever, K. E., & Bach-Peterson, J. (1980). Zarit Burden Interview Assessing Caregiver Burden. The Gerontologist, 20(6), 649–655
  57. Zhang, Y., & Bennett, M. R. (2024). Insights into Informal Caregivers’ Well-being: A Longitudinal Analysis of Care Intensity, Care Location, and Care Relationship. Journals of Gerontology - Series B Psychological Sciences and Social Sciences, 79(2), 1–12. https://doi.org/10.1093/geronb/gbad166

Last update:

No citation recorded.

Last update: 2026-04-21 15:09:34

No citation recorded.