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Family Experiences of Mental Illness: A Meta-Synthesis

Iril I Panes  -  Sultan Kudarat State University, Philippines
*Cyruz P Tuppal orcid  -  St. Paul University Philippines System, Philippines
Mark Donald C Reñosa  -  Department of Epidemiology and Biostatistics, Research Institute for Tropical Medicine, Philippines
Ma Elizabeth P Baua  -  St. Paul University Philippines System, Philippines
Paolo D Vega  -  Mount Sinai St. Luke’s Hospital, United States
Open Access Copyright (c) 2019 Nurse Media Journal of Nursing

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Abstract

Background: Caring for a family member diagnosed with mental illness requires a holistic support system. However, some families experience the feeling of burden, loss, and stigma affecting the entire family structure. Therefore, exploring the studies on the family experiences of mental illness is crucial.

Purpose: This meta-synthesis explored the available literature on the family experiences of mental illness.

Methods: An initial comprehensive search was conducted in the following databases such as Web of Science, Scopus, PsycINFO, CINAHL and Ovid-based MEDLINE using the keywords like mental illness, mental disorder, family, family member, qualitative studies and phenomenology. A total of five qualitative studies and one thesis dissertation published between 2001-2016 that elicited views of family members on their experience of mental illness were reviewed. A thematic analysis was used to identify, analyze, and report patterns among the data, allowing for specific organization and description and interpretations.

Results: Family empowerment emerged as the grand theme from the perceived effects of mental illness on the family, the process of coping and their perspectives on family empowerment grounded on family experiences.

Conclusion: Despite caring for a family member diagnosed with mental illness imposes threats, it further offers openness, readiness, and acceptance that empower each family to appreciate, acknowledge, and affirm the wholeness of a family member with mental illness.

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Keywords: Family burden; family empowerment; mental health; meta-synthesis

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  1. Ae-Ngibise, K. A., Doku, V. C., Asante, K. P., & Owusu-Agyei, S. (2015). The experience of caregivers of people living with serious mental disorders: A study from rural Ghana. Global Health Action, 8, 26957. doi: http://10.3402/gha.v8.26957
  2. Aguirre, R. T., & Bolton, K. W. (2014). Qualitative interpretive meta-synthesis in social work research: Uncharted territory. Journal of Social Work, 14(3), 279-294. doi: http://doi:10.1177/1468017313476797
  3. Angermeyer, M. C., Schulze, B., & Dietrich, S. (2003). Courtesy stigma-a focus group study of relatives of schizophrenia patients. Social Psychiatry Epidemiology, 38(10), 593-602. doi: http://10.1007/s00127-003-0680-x
  4. Beck, C. T. (2009). Metasynthesis: A goldmine for evidence-based practice. AORN Journal, 90(5), 701-702, 705-710. doi: http://10.1016/j.aorn.2009.06.025
  5. Borgo, E. L. P., Ramos-Cerqueira, A. T. D. A., & Torres, A. R. (2017). Burden and distress in caregivers of patients with panic disorder and agoraphobia. Journal of Nervous and Mental Disease, 205(1), 23-30. doi: http://10.1097/NMD.0000000000000614
  6. Charara, R., Forouzanfar, M., Naghavi, M., Moradi-Lakeh, M., Afshin, A., Vos, T., . . . Mokdad, A. H. (2017). The burden of mental disorders in the Eastern Mediterranean region, 1990-2013. PloS One, 12(1). doi: http://10.1371/journal.pone.0169575
  7. Elias, A., & Paradies, Y. (2016). Estimating the mental health costs of racial discrimination. BMC Public Health, 16(1), 1205. doi: http://10.1186/s12889-016-3868-1
  8. Girma, E., Moller-Leimkuhler, A. M., Dehning, S., Mueller, N., Tesfaye, M., & Froeschl, G. (2014). Self-stigma among caregivers of people with mental illness: Toward caregivers' empowerment. Journal of Multidisciplinary Healthcare, 7, 37-43. doi: http://10.2147/jmdh.s57259
  9. Hsiao, F. H., Klimidis, S., Minas, H., & Tan, E. S. (2006). Cultural attribution of mental health suffering in Chinese societies: The views of Chinese patients with mental illness and their caregivers. Journal of Clinical Nursing, 15(8), 998-1006. doi: http://10.1111/j.1365-2702.2006.01331.x
  10. Kizilirmak, B., & Küçük, L. (2016). Care burden level and mental health condition of the families of individuals with mental disorders. Archives of Psychiatric Nursing, 30(1), 47-54. doi: http://10.1016/j.apnu.2015.10.004
  11. Krupchanka, D., Kruk, N., Murray, J., Davey, S., Bezborodovs, N., Winkler, P., . . . Sartorius, N. (2016). Experience of stigma in the private life of relatives of people diagnosed with schizophrenia in the Republic of Belarus. Social Psychiatry and Psychiatric Epidemiology, 51(5), 757-765. doi: http://10.1007/s00127-016-1190-y
  12. Larson, J. E., & Corrigan, P. (2008). The stigma of families with mental illness. Academic Psychiatry, 32(2), 87-91
  13. Marimbe-Dube, B. (2013). The perceived impact of a relative's mental illness on the family members, their reported coping strategies and needs: A Zimbabwean study. Master's Thesis, University of Cape Town. Retrieved from https://open.uct.ac.za/bitstream/handle/11427/5930/thesis_hsf_2013_marimbe_bd.pdf?se
  14. McCann, T. V., Lubman, D. I., & Clark, E. (2011). Responding to stigma: First-time caregivers of young people with first-episode psychosis. Psychiatry Services, 62(5), 548-550. doi: http://10.1176/ps.62.5.pss6205_0548
  15. Mulud, Z. A., & McCarthy, G. (2017). Caregiver burden among caregivers of individuals with severe mental illness: Testing the moderation and mediation models of resilience. Archives of Psychiatric Nursing, 31(1), 24-30. doi: http://10.1016/j.apnu.2016.07.019
  16. Muralidharan, A., Lucksted, A., Medoff, D., Fang, L. J., & Dixon, L. (2016). Stigma: A unique source of distress for family members of individuals with mental illness. Journal of Behavioral Health Services and Research, 43(3), 484-493. doi: http://10.1007/s11414-014-9437-4
  17. QSR International. (2016). NVivo qualitative data analysis software (Version 11.4.0): QSR International Pty Ltd
  18. Sandelowski, M. (2007). From meta-synthesis to method: Appraising the qualitative research synthesis report. In C. Webb & B. Roe (Eds). Reviewing Research Evidence for Nursing Practice (pp. 88-111): Blackwell Publishing Ltd
  19. Sandelowski, M., & Barroso, J. (2008). Handbook for synthesizing qualitative research. New York: Springer
  20. Stein, C. H., & Wemmerus, V. A. (2001). Searching for a normal life: Personal accounts of adults with schizophrenia, their parents and well-siblings. American Journal of Community Psychology, 29(5), 725-746. doi: http://10.1023/a:1010465117848
  21. Stuart, G. W., & Laraia, M. T. (2005). Principles and Practice of Psychiatric Nursing. (8th ed). St. Louis, MO: Mosby
  22. van der Sanden, R. L. M., Pryor, J. B., Stutterheim, S. E., Kok, G., & Bos, A. E. R. (2016). Stigma by association and family burden among family members of people with mental illness: The mediating role of coping. Social Psychiatry and Psychiatric Epidemiology, 51(9), 1233-1245. doi: http://10.1007/s00127-016-1256-x
  23. von Kardorff, E., Soltaninejad, A., Kamali, M., & Eslami, S. (2016). Family caregiver burden in mental illnesses: The case of affective disorders and schizophrenia–a qualitative exploratory study. Nordic Journal of Psychiatry, 70(4), 248-254
  24. World Health Organization. (2001). Strengthening mental health promotion. (Fact Sheet, No. 220). Geneva, Switzerland: World Health Organization
  25. World Health Organization. (2013). Comprehensive mental health action plan 2013–2020. Geneva, Switzerland: World Health Organization. Retrieved from http://www.who.int
  26. Zauszniewski, J. A., Bekhet, A. K., & Suresky, M. J. (2009). Relationships among perceived burden, depressive cognitions, resourcefulness, and quality of life in female relatives of seriously mentally ill adults. Issues on Mental Health Nursing, 30(3), 142-150. doi: http://10.1080/01612840802557204

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